Wednesday, April 25, 2012

Don't Ignore Infertility

This week (April 22 - 28) is National Infertility Awareness Week.  Since this disease has personally affected us, I thought it would be good to advocate awareness and education.  I have noticed since we found out, and in turn told friends and family, relationships have been... different.  I think for people not affected by infertility, they don't know what to say - I get that.  Or when they do find something to say, they haven't quite thought it through and can hurt the feelings of their friends and family - a reason why I believe many couples keep mum about it.  I know for me personally, it is not something I want to have tattooed to my forehead, but I also don't want it to become something I am shameful of.  Yes, this disease sucks, but I would like to educate everyone about it so those who have it can find treatments or peace and those who don't can be a comfort to their friends and family affected.
RESOLVE (the National Infertility Association) has a lot of good information out there, which is where I got the following from.  I will include what I believe is important, but also reference the website if you want more information.

Fast Facts About Infertility

Infertility is a disease that results in the abnormal functioning of the male or female reproductive system.  Both the American Society for Reproductive Medicine (ASRM), World Health Organization (WHO) and the American College of Obstetricians and Gynecologists (ACOG) recognize infertility as a disease.   

Infertility is defined as the inability to conceive after one year of unprotected intercourse (six months if the woman is over age 35) or the inability to carry a pregnancy to live birth.    

Infertility affects 7.3 million people in the U.S. This figure represents 12% of women of childbearing age, or 1 in 8 couples. (2002 National Survey of Family Growth)    

Approximately one-third of infertility is attributed to the female partner, one-third attributed to the male partner and one-third is caused by a combination of problems in both partners or, is unexplained.  (http://www.asrm.org/)    

Approximately 44% of women with infertility have sought medical assistance. Of those, approximately 65% give birth. (Infertility As A Covered Benefit, William M. Mercer, 1997)


Infertility Etiquette

Don't Tell Them to Relax 
Infertility is a diagnosable medical problem - relaxation itself does not cure medical infertility. Besides, telling someone to relax (in just about any situation) just adds on the pressure and makes relaxation almost impossible!
 

Don't Minimize the Problem
Comments like, "Just enjoy being able to sleep late . . . .travel . . etc.," do not offer comfort. Instead, these comments make infertile people feel like you are minimizing their pain. You wouldn't tell somebody whose parent just died to be thankful that he no longer has to buy Father's Day or Mother's Day cards.In the same vein, being able to sleep late or travel does not provide comfort to somebody who desperately wants a child.

Don't Say There Are Worse Things That Could Happen
Along the same lines, don't tell your friend that there are worse things that she could be going through. Who is the final authority on what is the "worst" thing that could happen to someone? Is it going through a divorce? Watching a loved one die? Losing a job?
 

Don't Say They Aren't Meant to Be Parents
How incredibly insensitive to imply that someone would be such a bad mother that God felt the need to divinely sterilize them.  Even if you aren't religious, the "maybe it's not meant to be" comments are not comforting.  Infertility is a medical condition, not a punishment from God or Mother Nature.
 

Don't Ask Why They Aren't Trying IVF
People ask, "Why don't you just try IVF?" in the same casual tone they would use to ask, "Why don't you try shopping at another store?"  It is truly a personal decision between husband, wife and nobody else. 

Don't Be Crude
It is sad that this paragraph even needs to be included, but some of you need to hear this - Don't make crude jokes about your friend's vulnerable position. Crude comments like "I'll donate the sperm" or "You can have my little devil" are not funny, and they only irritate your friends (and we might take you up on it!)    

Don't Complain About Your Pregnancy
I understand that when you are pregnant, your hormones are going crazy and you experience a lot of discomfort, such as queasiness, stretch marks, and fatigue. You have every right to vent about the discomforts to any one else in your life, but don't put your infertile friend in the position of comforting you.  Your infertile friend would give anything to experience the discomforts you are enduring because those discomforts come from a baby growing inside of you.
Stay sensitive to your infertile friend's emotions, and give her the leeway that she needs to be happy for you while she cries for herself.  The fact that she is willing to endure such pain in order to celebrate your new baby with you speaks volumes about how much your friendship means to her.

Don't Treat Them Like They Are Ignorant
Let's face it-no one can fully appreciate the responsibilities involved in parenting until they are, themselves, parents.  If anything, people who have been trying to become pregnant longer have had more time to think about those responsibilities.  They have also probably been around lots of babies as their friends started their families.
Perhaps part of what fuels this perception is that infertile couples have a longer time to "dream" about what being a parent will be like.  Like every other couple, we have our fantasies - they are some of the few parent-to-be perks that we have so let us have them.  You can give us your knowing looks when we discover the truth later.

Don't Gossip About Your Friend's Condition
Gossiping about infertility is not usually done in a malicious manner.  The gossipers are usually well-meaning people who are only trying to find out more about infertility so they can help their loved ones.
  Regardless of why you are sharing this information with someone else, it hurts and embarrasses your friend to find out that Madge the bank teller knows all about your journey.  Respect your friend's privacy, and don't share any information that your friend hasn't authorized.

Don't Push Adoption (Yet)
Adoption is a wonderful way for infertile people to become parents.  However, the couple needs to work through many issues before they will be ready to make an adoption decision.  Before they can make the decision to love a "stranger's baby," they must first grieve the loss of that baby with Daddy's eyes and Mommy's nose.  Adoption social workers recognize the importance of the grieving process.  My husband and I have noticed that adoption agencies don't ask "Why do you want to adopt a baby?" but rather "Have you grieved the loss of your biological child yet?"  Our social worker emphasized how important it is to shut one door before you open another.
You do, indeed, need to grieve this loss before you are ready to start the adoption process. The adoption process is very long and expensive, and it is not an easy road. So, the couple needs to be very sure that they can let go of the hope of a biological child and that they can love an adopted baby.

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We just got through the "do not say/do" - so, what can you say to your infertile friends? Unless you say "I am giving you this baby," there is nothing you can say that will erase their pain.  It isn't your job to erase their pain, but there is a lot you can do to lesson the load. Here are a few ideas:

Let Them Know That You Care
The best thing you can do is let your infertile friends know that you care.  Send them cards.  Let them cry on your shoulder.  Let them know you are praying for them. Offer the same support you would offer a friend who has lost a loved one.  Just knowing they can count on you to be there for them lightens the load and lets them know that they aren't going through this alone.
 

Remember Them on Mother's Day
Mother's Day is an incredibly painful time for infertile women. You cannot get away from it - There are ads on the TV, posters at the stores, church sermons devoted to celebrating motherhood, and all of the plans for celebrating with your own mother and mother-in-law.  Remember your infertile friends on Mother's Day, and send them a card to let them know you are thinking of them. They will appreciate knowing that you haven't "forgotten" them.

Support Their Decision to Stop Treatments
No couple can endure infertility treatments forever - at some point, they will stop. This is an agonizing decision to make, and it involves even more grief. Even if the couple chooses to adopt a baby, they must still first grieve the loss of that biological baby.
Once the couple has made the decision to stop treatments, support their decision.  Don't encourage them to try again, and don't discourage them from adopting, if that is their choice.

What You Can Do
Don’t ignore opportunities to talk about infertility.   Do you blog? Tweet? Teach a health class? Have a book group? Take advantage of opportunities in your daily life to share information about or bring attention to the cause of infertility.
Don’t ignore legislation affecting infertility patients.
  Several pending and existing laws encroach upon the rights of the infertile to freely build their families. Help change policy and protect your rights by writing to your representative.
Don’t ignore infertility support available
.  Infertility is a lonely road, but no one has to travel it alone. Join an online infertility forum or local support group to find a warm, welcoming environment.
Don’t ignore people struggling with infertility
Reach out to friends or family members struggling with infertility. Ask how you can best support them in their journey. 
Don’t ignore the impact of making a donation
. Every cent donated donated helps bring needed programs and services to women and men with infertility. Sign up for the Walk of Hope or create your own fundraising event in your location.
Don’t ignore family building alternatives
You can build your family through many paths. During this week, open your mind to options that you had not previously considered.
Don’t ignore your own strength
. If you’re engaged in the fight against infertility, take a moment to recognize your courage and determination, as well as that of the sisters and brothers fighting alongside you.

Sunday, April 8, 2012

Check, Check, Check!


We are on our last few steps of the process: fire inspection, health inspections, health status forms turned in and home study (followed by “Dear Expectant Mother” letter and our profile book).  Hopefully after those are done and approved, we will officially be a “Waiting Family”!!  I look back at it all and the first year was long and hard since it seemed hopeless.  However, once we got in a program, time has just been flying by!!  We have learned a lot even in the small time we have been at it – patience, trust, grace, etc…  Here is our currently “to-do” list to get ready for these inspections, which will hopefully get done by the end of May!
 
Fire Inspection – not yet scheduled
  • At least 2 functional smoke detectors  – located in halls, outside each bedroom and at least one on each level of the home
  • No overloaded outlets
  • Carbon monoxide detector (due to the gas fireplace)
  • No flammable liquids stored near a heat source
  • Portable/space heaters have covers
  • Screened fireplace
  • At least two unlocked exits to the outside from the home
  • Electrical wiring system appears in good repair
  • Electrical outlets have child-proof covers or are safety outlets
  • Fuses/circuit breakers in fuse box appear in good operating condition
  • Cords for electrical appliances and lighting fixtures appear in good operating condition
  • Extension cords are stored properly
  • Gas appliances (heaters, stoves, water heaters) have metal tubing and metal connections
  • Central heating system is periodically inspected by qualified inspector
  • Combustibles are stored or placed well away from any stove, heater or fireplace
  • All lighters and matched are kept out of the reach of children
  • Flammable liquids are stored in safety cans and kept away from heat and children
  • Paint is kept is tightly closed, metal containers
  • The premises are free of rubbish - especially the attic, garage and basement
  • Trash is burned in an area away from the children
  • There is an operable 5-pound dry chemical fire extinguisher available for use in the kitchen
  • Fire extinguisher is serviced after each use and checked for proper weight at least one time each year
  • Family has an evacuation plan for emergencies
  • Fire drills are practiced regularly
  • There is a method available to alert family to a fire (alarm, bell, etc.)
Environmental Health Inspection – not yet scheduled
  • Home and grounds are kept clean and free of hazards to children
  • Kitchen and all food preparation, storage, and serving areas are kept clean
  • Perishable food is refrigerated or safely stored in other ways
  • Home has an adequate supply of water that meets the standards for drinking water of the Texas Department of Health
  • Home has an adequate, safe sewage disposal system
  • Plumbing appears to be in good working condition
  • Home has hot and cold running water
  • There is at least one toilet, lavatory, and bathtub/shower inside the home
  • Bathtubs are kept clean
  • Soap and toilet paper are available in the bathrooms at all times
  • Each child has a clean towel available, or paper towels are available
  • Garbage is removed at least one time per week
  • Garbage is kept in metal or plastic containers with tight fitting lids in an area away from children
  • The home is kept free from insects, mice and rats
  • The yard is kept free from garbage and trash
  • The house is adequately ventilated and free from bad odors
  • Windows and outside doors kept open for ventilation are screened
  • Cleaning supplies, insect spray, medicines, and other materials that can harm young children are kept where children under the age of 8, and children for whom these items might present an unusual danger, cannot reach them
  • Electric fans are securely mounted where children under the age of 8, or children whom these items might present an unusual danger, cannot reach them, or have guards which keep children from touching the blades
  • Outdoor steps are not slippery
  • Porches, railings, playhouses, and other wooden structures do not have splinters
  • Indoor floors and steps are not slippery, and are kept dry when children are using them
  • Indoor wood surfaces and objects do not have splinters
  • Glass doors are marked at the child’s eye level to prevent accidents
  • Home is clean and well maintained
  • Fence around swimming pool
  • Proximity of home to lake or other waterways?
  • Fenced play yard
  • Yard is free of hazards to children
  • Yard must drain – no standing water
  • Firearms must be stored separate from ammunition – both is locked containers
  • Premise must be free of debris
  • All chemicals out of the reach of children
 
Health Status Forms – filled out by doctor, not yet scheduled
  • Medical history
  • Physical
  • Drug screen
  • TB test
  • Hepatitis B immunization
Home Study – schedule after fire and health inspections pass and health status forms done
  • All mattresses for children have plastic cover/protector
  • Infant cribs meet proper safety requirements
  • Crib bumpers, soft bedding/comforters, stuffed animals and pillows are not used in crib
  • Adequate and accessible personal storage space for each child
  • Each child has a towel and there is adequate soap/hygiene items available for use
  • All food items stored off the floor
  • Food is stored appropriately – plastic wrap and foil are not used to seal food containers
  • Thermometer temperature in refrigerator is at 37 and freezer is at 0 degrees
  • Cleaning supplies are stored separately from food and out of the reach of children – if stored anywhere else, they must be behind a lock
  • Baby gates are used for stairways and fire place
  • All windows have screens
  • Tobacco products are used outside
  • An emergency kit (water, change of clothes, battery powered radio, sanitary wipes, blanket and non-perishable food) is readily accessible, and includes at least 2 working flashlights with batteries
  • At least one fire extinguisher on each level of the home
  • Fire inspection and environmental inspection are posted
  • All medication is locked behind at least one lock, including refrigerated medication
  • All psychotropic medications are locked behind two locks
  • All outdoor areas appear safe and clean
  • Pool area is enclosed by a 4’ locked fence – at least 2 life-saving devices are accessible
  • Vehicles used for transporting children are in good repair
  • All child safety car seats meet requirements and are installed safely
  • Tools and lawn equipment kept out of reach of children or in locked sheds
  • Thermometers in refrigerator and freezer
  • No trampolines
It is a fairly daunting list to be done in about a month - so if we seem stressed, you now know why!  Please keep us in your prayers as we work through this together and keep our sanity and our jobs!

Friday, April 6, 2012

Seminar Summary


Here is the outline of what we learned/talked about last Saturday at our Adoption Seminar!
  • Legal Issues: Legal Terms, Adoption Law, Family Medical Leave Act (FMLA), Multi Ethnic Placement Act, and Indian Child Welfare Act (ICWA)
  • Preparing for Adoption: Fertility Issues, Birthparents, Adoption is a Lifelong process
  • Adoptive Parent Speakers: The Apperleys (great "real life" adoption story!)
  • The Adoption Process: Modes of Adoption, Home Study Process, Profiles & Matches, Placement Packet and Finalization
  • Grief and Loss: Managing Grief & Loss...
  • SIDS/Shaken Baby Syndrome: How to prevent...
It was a lot of information, but a good day nonetheless.  The next thing for us is to get our fire inspection, environmental inspection and then our homestudy, so our free time is consumed by getting rid of stuff and cleaning, cleaning, CLEANING!  :)  Will post our new “to-do” list soon.   

Happy Good Friday!